Monday, 28 February 2011

Owl obsessed

This week.... I shall be mostly.... watching Studio Ghibli films.... and making owls :-D

Thanx to the delivery men today and Saturday that is, who dropped off a pile of fleece for me!!  You have no idea how bl**dy hard it is trying to find matching fleece though, the colours for my first few owls I got from a place that no longer sells those colours, and elsewhere the colours are either named entirely different or same name different colour, it's costing me a fortune just for samples and I still haven't found matches yet!

Raymond guarding the fleece pile!

So this week is reasonably busy, I have to drive (with the aid of my wrist support, or with Mr Loops chauffeuring me) to the hospital to book my chest x-ray, I have a blood pressure check on Wednesday (as my BP is through the roof, hum ho), I have to go and get my refund for £28 worth of prescriptions from last week (when my pre-payment certificate finally comes through from the NHS), aaaaand I have to pick up a few more new meds from the pharmacy!

But when I'm not doing that I shall be mostly.... watching Studio Ghibli films.... and making owls :-)


Saturday, 26 February 2011


So much for that New Years resolution I had....

Anyways, serious post today.  So I haven't mentioned this in my blog before but if you're a fan of Loop-da-Loop on Facebook then you're probably aware that I've been awaiting a diagnosis recently.

  • April
    - Pain began in RH wrist
  • May
    - 1st visit to Quacks, given anti-inflammatories
    - Pain began in RH ring finger knuckle, thumb and hand knuckles
  • June    
    - 2nd visit to Quacks, anti-inflamms = fail 
  • August    
    - Wrist X-ray and blood test
  • Sept    
    - 3rd visit to Quacks, results = nothing obvious in x-ray, negative results for rheumatoid arthritis in the blood test
  • Nov    
    - 1st visit to rheumatologist
    - Pain began in neck 
  • Dec
    - MRI scan 
  • Jan
    - Pain began in RH ankle
    - At this point up/down movement in wrist has become restricted to less than 45°
    - Blood test 
  • Feb   
    - 2nd visit to rheumatologist for results and DIAGNOSIS!!!

So it's been a long journey/wait and it's been very important to me to get sorted, despite my irrational fear of doctors and hospitals (and dentists!), because I was concerned about the future of my crafting!!

To put you out of your misery, I've been diagnosed with Psoriatic Arthritis, which as I understand it is very similar to and often incorrectly diagnosed as Rheumatic Diagnosis.  I have to say it didn't mean an awful lot to me at first, and the diagnosis was somewhat of a shock as I considered arthritis to be an old person's disease and I'm only 34, but it's been good to put a name to the problem because I'm a control freak and knowing means I've been able to research it myself!

  • Did you know that Psoriatic Arthritis is a disease?  (Non-transmittable incidentally)  There are 5 different sub-categories of it, and around 200 types of arthritis overall!  Osteoarthritis is the type that is related to ageing, but Psoriatic Arthritis can come on at any age.
  • Around 10% of psoriasis sufferers can go on to develop Psoriatic Arthritis, it's not developed relative to the severity of the psoriasis though.  Mostly it develops after the psoriasis, but it can sometimes develop before or even without any psoriasis.  In my case I didn't think I had psoriasis until I was diagnosed (tho my father does), but then my GP realised that I did but it had been mis-diagnosed by a different GP!
  • The major way of diagnosing the difference between Psoriatic and Rheumatoid Arthritis is that with the former you test negative for the latter in blood tests!  It can also be diagnosed through the pattern of joints affected, and closer inspection via MRI.

Well I'm sure you enjoyed that exciting info... Anyways, so even after the research it's still rather scary, and even the meds are scary, but it's spread so quickly and the pain has increased in the last month so that at this stage I'm eager to try them asap!!

  • The primary treatment is with an immunosuppressant like Methotrexate (which I shall be taking), which is a chemotherapy treatment but at a lesser dose than for cancers, which targets the cause of the damage to try and hold back the disease.  The side-effects are scary though and I have to have a chest x-ray to start (as a baseline) and have blood tests every 2 week to check for liver and kidney function, and it's likely to cause nausea and fatigue for a few days a week around my dose day.
  • The secondary treatment is anti-inflammatories, I've tried Diclofenac twice with no effect and I've just started taking a new one - Arcoxia, with another med to protect my stomach it!

It's no doubt going to be a long path, and I don't know what it holds (apart from having to take lots of pills and go to the hospital weekly for the time being), I could be on the meds forever, I could have to try several before finding one that works for me, but as long as it reduces the pain and gives me back more motion and the ability to keep sewing and crochetting and making jewellery for as long as possible then I think I'll be happy :-)

I'll check back with my progress at a later date, but until then to cheer us both up, here's a piccie of some cute Husky puppies I found on the internet


Tuesday, 8 February 2011

Winner announced!!

Well thanx for all the loverly comments everyone, very much appreciated!  Here's to getting my next 500 Facebook fans and then of course another giveaway :-D

So without further ado..... drumroll please.....

Mr [weirdo] Loops and the Las Vegas tub of names!!

Mr Loops displaying the winners name, in a rude manner because he's clearly a child...

The winner is....... KRISTINA CORNE!!!

Kristina, please drop me an email with your address and which cupcake pouch you would like :-D

Commiserations to everyone else, better luck next giveaway, remember to invite your friends to my Facebook Fan Page and then we'll get to the 1000 fan giveaway even quicker ;-)


Friday, 4 February 2011

500 Facebook fans giveaway!!

Well I'm a little slow posting this as Loop-da-Loop got to 500 fans on Facebook last week, but better late than never :-D  Soooo for this momentous landmark I'm having a giveaway, yikwa!!

The prize up for grabs is one of these Loop-da-Loop cupcake zipper pouches (winner can choose their fave).

To enter, you must:
  1. comment on this blog post
    (you can leave a post if you have a Google/Blogger/LiveJournal/WordPress/Aim/TypePad/OpenId sign in I believe, but if you would prefer you can email me instead and I'll post here for you)
  2. be a "liker" of my Facebook fanpage
    (please leave your [fb] name if it's different to your [blog] name)
I don't mind what you comment about but I would appreciate something constructive, for instance what you would like to see more of in my shop, what item or group of items you like the most that I make, or if you're short of words then just say hi!!  Please no blatant adverts though or your post will be removed and you won't be entered into the draw.

Entries will be placed in my lucky Las Vegas casino bucket of wonder, and Mr Loops the fan-plucker will rummage through and pluck out our winner!!!

Here's a shot of each pouch showing the linings!!

UK postage only for this giveaway, but when I get to 1000 fans I will post worldwide :-)

Good luck chaps and chapesses, you have until 4pm on Tuesday to enter!! :-)